Comment on chronically ch(ill) – diversity as a spoonie by mkdec

Kristen, thank you for reading! I agree- it’s a conversation that I think would be beneficial if it was more open. In private, I sometimes get good responses from professors and that’s great, but sometimes they don’t respond well, and at those times I wish I had disclosed my disability more openly so I could receive support from other classmates. I’m happy to say that I spoke up for myself against that professor, but the experience has made the entire class feel much less safe and it’s definitely a delicate line to balance between defending myself, and not upsetting someone in a position of authority over me. Thank you so much for your thoughts!

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Comment on chronically ch(ill) – diversity as a spoonie by mkdec

Farha, thank you for sharing! I can empathize with the difficulties in getting accommodation, and I loved how you brought up that sometimes it is difficult to know how to respond to sensitive issues. I think that your willingness to support others is awesome, and even when it can be awkward or uncomfortable to try and empathize with those struggling, in my experience just having support from someone is the biggest relief! I definielty relate to your points. Thank you for your openness!

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Comment on chronically ch(ill) – diversity as a spoonie by mkdec

Hello Leslie! Thank you so much for your thoughts! I agree, without knowing that a student is dealing with something invisible, it’s hard to offer the support. I think that you being so open minded is the biggest support that students with chronic illness can ask for, and I really appreciate your willingness to engage in conversation!

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Comment on chronically ch(ill) – diversity as a spoonie by mkdec

Hello! Sorry if my explanation was a bit wonky- essentially, big tasks like cleaning the house or going to visit friends will take more spoons than just brushing your teeth. However, without a chronic illness, it doesn’t matter how many they cost because you have an unlimited amount! Living with a chronic illness means deciding what you can spend your energy on, and what you have to step back from and not do. Thank you so much for your thoughts and your empathy!

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Comment on chronically ch(ill) – diversity as a spoonie by mkdec

Agreed! I can definitely say that when I notice a student slacking off, my first thought is not that they may have an invisible illness- even though I struggle with it myself! I really appreciate your emphasis on empathy- while it may be difficult at times, I think it is ultimately for the best that we give students the opportunity to explain their behavior and potentially disclose information about their struggles.

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Comment on chronically ch(ill) – diversity as a spoonie by mkdec

Michelle,
Thank you so much for your comment! I am so sorry that you have to deal with IBS symptoms, I can definitely sympathize on how exhausting it can be. I like your idea about disclosing to professors, and professors inviting students to engage in conversations about things that may be difficult in their education journey! I’ll have to implement that in the class that I TA.

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